Dr. Holly Longstaff
Research Privacy Advisor, Provincial Health Services Authority
Holly Longstaff is a PhD-prepared ethicist with a broad background in privacy and the ethics of health research. Holly is the ethicist for the BC Cancer Agency Research Ethics Board (REB) and is a member of Schulman Institutional Review Board’s Canadian panel. She is also the Research Privacy Advisor for the Provincial Health Services Authority (PHSA). Through her role as an ethicist and privacy advisor, Holly has extensive experience in reviewing proposed research studies for privacy and confidentiality requirements, and in helping researchers navigate the ethics and privacy requirements of their work.
Holly has also developed policy and related guidance documents for Health Canada and the Public Health Agency of Canada, created ethics, privacy and confidentiality educational materials for the Canadian Institutes of Health Research (CIHR) Ethics Office, and provided consulting services for a variety of organizations including the Canadian Clinical Trials Coordinating Centre and the BC Ethics Harmonization Initiative (BCEHI). She is currently collaborating on a CIHR grant held by principal investigator Dr. McGrail at UBC which focuses on consulting with the public about good governance models for data sharing and access to research resources.
Holly is passionate about supporting the research community in advancing ethically and privacy sound research, and committed to recommending practical ways to reduce and manage privacy risks in research.
Holly Longstaff is a PhD-prepared ethicist with a broad background in privacy and the ethics of health research. Holly is the ethicist for the BC Cancer Agency Research Ethics Board (REB) and is a member of Schulman Institutional Review Board’s Canadian panel. She is also the Research Privacy Advisor for the Provincial Health Services Authority (PHSA). Through her role as an ethicist and privacy advisor, Holly has extensive experience in reviewing proposed research studies for privacy and confidentiality requirements, and in helping researchers navigate the ethics and privacy requirements of their work.
Holly has also developed policy and related guidance documents for Health Canada and the Public Health Agency of Canada, created ethics, privacy and confidentiality educational materials for the Canadian Institutes of Health Research (CIHR) Ethics Office, and provided consulting services for a variety of organizations including the Canadian Clinical Trials Coordinating Centre and the BC Ethics Harmonization Initiative (BCEHI). She is currently collaborating on a CIHR grant held by principal investigator Dr. McGrail at UBC which focuses on consulting with the public about good governance models for data sharing and access to research resources.
Holly is passionate about supporting the research community in advancing ethically and privacy sound research, and committed to recommending practical ways to reduce and manage privacy risks in research.
